Speaking & Advocacy
Together, we can create a space of understanding, empathy, and action for families who need it most. I’m on a mission to share my personal journey, insights on unshakeable joy, resilience, faith, hope, and how to navigate the challenges of raising a child with special needs.
MY STORY
As a mother to a sweet daughter with Leigh Syndrome, a rare mitochondrial disease, I have faced challenges that many could never imagine. But through it all, my faith, resilience, and the unwavering support of my family have allowed me to navigate this journey with strength and grace.
Parenting a child with a rare disease has taught me more about life than I ever anticipated. It has shattered my expectations of what parenting "should" look like and instead opened my heart to a deeper, more profound understanding of what truly matters: love, joy, and the power of community.
While the road has been filled with grief and uncertainty, it has also been rich with unshakeable joy. I’ve learned to find strength in moments of weakness, and resilience in times of despair. Each step of this journey has been an opportunity for growth—and now, I am passionate about sharing the lessons I’ve learned with others.
PATRICE SMITH — CEO & FOUNDER
My Mission is Simple:
To raise awareness, improve the quality of life for families like mine, and empower others to embrace the unexpected challenges that life presents. Whether through advocacy, storytelling, or sharing the lessons learned, my goal is to provide insight, hope, and inspiration to those facing their own journeys.
